I just wanted to share that Mr. Bug is doing AMAZING this week! He continues to tolerate tiny (but regular) decreases in his ventilator settings, and he is tolerating decreases in his paralytic and sedative drugs such that he is beginning to try to pull things out! He can mouth words in response, he cries appropriately, he asks for Mamma all the time, and he LOVES reading! Why is this important? Well, it is unknown how much brain damage, if any, this ordeal has caused. Any number of issues could cause brain involvement, and the fact that he appears to be fairly normal so far is a HUGE relief! The Lord has shown a great deal of mercy to Mr. Bug! He is also tolerating the daily hemodialysis pretty well with safe blood pressure levels (I’ll explain later the issues this kind of dialysis can have). There was an ultrasound of his kidneys scheduled, and I am waiting to hear back as to the results of that. That ultrasound will show how much blood flow his kidneys have at each point in his heart beat, and can give a lot of information about whether his kidneys are completely shot, or if they are likely to heal. Yesterday he mouthed all his animal sounds, we read “Goodnight Moon” (his FAVORITE book), and read for about 1/2 hour from A Child’s Garden of Verses. I always thought “The Land of Counterpane” was so weird, but it’s now my favorite poem from that collection:
When I was sick and lay a-bed,
I had two pillows at my head,
And all my toys beside me lay,
To keep me happy all the day.
And sometimes for an hour or so
I watched my leaden soldiers go,
With different uniforms and drills,
Among the bed-clothes, through the hills;
And sometimes sent my ships in fleets
All up and down among the sheets;
Or brought my trees and houses out,
And planted cities all about.
I was the giant great and still
That sits upon the pillow-hill,
And sees before him, dale and plain,
The pleasant land of counterpane.
Let’s pray that Mr. Bug can learn to enjoy life in bed over the next few months and that God gives him the gift of an extremely active imagination! Love my baby boy!
Please continue to pray for kidneys, liver, lungs, all blood-producing parts of him as he is still in such deep water that his chances of coming to the surface are next to nothing, even with these improvements! Healing a tiny boy is easy for our Father, who sustains the universe as He wills. Don’t become weary in your prayers! Remember, he needs a year-prayer plan from everyone!
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